Hospice Patients Alliance - Signs of Approaching Death
SIGNS AND SYMPTOMS OF APPROACHING DEATH
When confronted with approaching death, many of us wonder when
exactly will death occur. Many of us ask the question, "How
much time is left?" This can often be a difficult question
to answer. The dying do not always cooperate with the predictions
of the doctors, nurses or others who tell family members or
patients how much time is left.
Hospice staff have frequently observed that even the
predictions by physicians about the length of time from the
original diagnosis till death is often inaccurate. Many families
report that "the doctor told us he [the patient] only had so
much time left, and he's lived much longer than that."
... or a similar story. Statistical averages do not tell us
exactly how long a particular patient has to live; they can only
serve as a general guideline or point of reference.
Although statistical averages do not help much in an
individual case, there are specific signs of approaching death
which may be observed, and which do indicate that death is
approaching nearer. Each individual patient is different. Not all
individuals will show all of these signs, nor are all of the
signs of approaching death always present in every case.
Depending on the type of terminal illness and the metabolic
condition of the patient, different signs and symptoms arise. An
experienced physician or hospice nurse can often explain these
signs and symptoms to you. If you have questions about changes in
your loved one's condition, ask your hospice nurse for an
explanation, that is one of the reasons she is serving you.
There are two phases which arise prior to the actual
time of death: the "pre-active phase of dying," and the
"active phase of dying." On average, the preactive
phase of dying may last approximately two weeks, while on
average, the active phase of dying lasts about three
days.
We say "on average" because there are
<strong>often</strong> exceptions to the rule. Some patients have
exhibited signs of the preactive phase of dying for a month or
longer, while some patients exhibit signs of the active phase of
dying for two weeks. Many hospice staff have been fooled into
thinking that death was about to occur, when the patient had
unusually low blood pressure or longer periods of pausing in the
breathing rhythym. However, some patients with these symptoms can
suddenly recover and live a week, a month or even longer. Low
blood pressure alone or long periods of pausing in the breathing
(apnea) are not reliable indicators of imminent death in all
cases. God alone knows for sure when death will occur.
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Signs of the preactive phase of dying:
# increased restlessness, confusion, agitation, inability to stay content in one position and insisting on changing positions frequently (exhausting family and caregivers)
# withdrawal from active participation in social activities
# increased periods of sleep, lethargy
# decreased intake of food and liquids
# beginning to show periods of pausing in the breathing (apnea) whether awake or sleeping
# patient reports seeing persons who had already died
# patient states that he or she is dying
# patient requests family visit to settle unfinished business and tie up loose ends
# inability to heal or recover from wounds or infections
# increased swelling (edema) of either the extremities or the entire body
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Signs of the Active Phase of Dying
# inability to arouse patient at all (coma) or, ability to only arouse patient with great effort but patient quickly returns to severely unresponsive state (semi-coma)
# severe agitation in patient, hallucinations, acting crazy and not in patient's normal manner or personality
# much longer periods of pausing in the breathing (apnea)
# dramatic changes in the breathing pattern including apnea, but also including very rapid breathing or cyclic changes in the patterns of breathing (such as slow progressing to very fast and then slow again, or shallow progressing to very deep breathing while also changing rate of breathing to very fast and then slow)
# other very abnormal breathing patterns
# severely increased respiratory congestion or fluid buildup in lungs
# inability to swallow any fluids at all (not taking any food by mouth voluntarily as well)
# patient states that he or she is going to die
# patient breathing through wide open mouth continuously and no longer can speak even if awake
# urinary or bowel incontinence in a patient who was not incontinent before
# marked decrease in urine output and darkening color of urine or very abnormal colors (such as red or brown)
# blood pressure dropping dramatically from patient's normal blood pressure range (more than a 20 or 30 point drop)
# systolic blood pressure below 70, diastolic blood pressure below 50
# patient's extremities (such as hands, arms, feet and legs) feel very cold to touch
# patient complains that his or her legs/feet are numb and cannot be felt at all
# cyanosis, or a bluish or purple coloring to the patients arms and legs, especially the feet and hands)
# patient's body is held in rigid unchanging position
# jaw drop; the patient's jaw is no longer held straight and may drop to the side their head is lying towards
Although all patients do not show all of these signs, many of these signs will be seen in some patients. The reason for the tradition of "keeping a vigil" when someone is dying is that we really don't know exactly when death will occur until it is obviously happening. If you wish to "be there"
with your loved one when death occurs, keeping a vigil at the bedside is part of the process.
Always remember that your loved one can often hear you even up till the very end, even though he or she cannot respond by speaking. Your loving presence at the bedside can be a great expression of your love for your loved one and help him to feel calmer and more at peace at the time of death.
If you have questions about any of the changing signs or symptoms appearing in your loved one, ask your hospice nurse to explain them to you.
